scleroderma
Showing posts with label scleroderma. Show all posts

12.28.2014

New October Hair

When we did the Scleroderma run in June, I met a sweet gal from Cache Valley who's mom had Scleroderma. She gave me her number and told me to find her on facebook. Well, I did, and we've kind of chatted through FB and IG, and then in October, she messaged me and said that I should come get my hair done so we could hangout and talk.

I'm so glad I did. She is not only amazing at doing hair, but she is beautiful inside and out. She so friendly, and fun, and sweet. I'm grateful I was able to meet her, and look forward to spending more time with her...I need my hair done again! :)


You would never guess how old this gorgeous lady is....I still don't believe it, even though she has a 16 year old son...

And random, but today in church the Sister that Greg & I sit next to leaned over and asked if I knew of anyone else in Logan that had Scleroderma. I told her I didn't, and then she said that she knew of a lady who lived in our stake, but then moved and later passed away, who had it. I asked what the name was, and it was Tami's mom. Fun, small world (granted it is Cache Valley, so I guess I can't be too surprised!)

7.05.2014

First July Post

July is already here. I meant to do this post a while ago, but I didn't. So here goes.

June 25 we had our branch work bbq party thing. It was actually not too bad. It was just like work, only slightly more casual. I seriously love my job, because of my awesome co-workers. They are the absolute best. We have a lot of fun together, and get along really well. We literally just sat around and talked and laughed. Then my butt started hurting, so we left. It was a good night though.

This has been the summer of moths. There was one night Greg killed over 30 moths in our house. See, they wake him up, while I can usually just sleep right on through. Here is a picture of me in bed while Greg is out slaying the moths.

Sunday, June 29, was World Scleroderma Awareness Day, and since teal is the color for Scleroderma, I asked Greg if he'd wear his teal tie, which he did, and I wore my skirt that is like 3 sizes too big. We definitely rocked teal though.

This time of year is my favorite...when these beautiful flowers are in bloom. We bought some yellow ones this year, so I'm excited to see them bloom next summer.

And since we had a coupon that expired June 30,we went and got Arctic Circle shakes. I got cookie dough, of course. There is only one time of year in which I would NOT get cookie dough, and that is.......

HUCKLEBERRY DAYS! And guess what months they come in....JULY & AUGUST! I'm only slightly excited!

PS. I'll do an updated July post eventually. Stay tuned!

5.04.2014

Stepping Out!

So, if you're a friend of mine on facebook, I apologize for the Scleroderma overload, but I'm not done yet. Here is my blog plug for the upcoming Northern Utah 2014 - Stepping Out to Cure Scleroderma 5K Walk/Run.

Since being diagnosed with Scleroderma, I've decided that I want to do something at least once a year to raise money and awareness for it. I had no idea what I was going to do, and thoughts ran through my mind like hosting a 5K, or a volleyball tournament, but I had no idea how that would work. Luckily, in searching the internet, I found that there was already a fundraiser set up in Northern Utah. Perfect! Now I didn't have to stress about setting something up myself (though I do think it would be fun to put together a volleyball tournament or something!)

I had posted on facebook if any one wanted to do it with me, and got a few responses, but then when I was talking to my mom at Kennan's track me, she said she had spoken to my Aunt Laurel, and Laurel said that we should do it...with t-shirts and everything.

So here's what we've got planned: 

We are inviting anyone who is interested to join us in support of myself and others who are suffering with this disease. You can do this in any of the following ways.

Join us as we walk/run for the Northern Utah 2014 - Stepping Out to Cure Scleroderma 5K. Entry fee is $20 ($25 if you register the day of). You can choose to either run the 5K or do a 1 mile walk (which is what I'll be doing). Register by going {HERE}, clicking on "I want to attend the event and register," then click on "join a team" to join my team. Search for my team which is:

Sclero-what?

Question mark and all. You should see my team show up with me as the captain. If you don't, let me know and I'll try to walk you through it again.

We will also be having team shirts, which are $10 (separate from the registration fee). You don't have to purchase one if you are running/walking, these are just for fun and so "Team Bre" can stand out!

If you are unable to attend the walk/run, but would still like to donate directly to the Scleroderma Foundation on my behalf, you can go to my team page: http://scfo.convio.net/goto/sclero-what and click the "Support Scleroderma" button.

Or, you can just purchase a "Team Bre" t-shirt for $10, and all the proceeds will go to the Scleroderma Foundation.

If you want a specific size (adult or kids sizes), we need to know as soon as possible so we can get them ordered. You can either leave me a comment here, email me at bre11414@hotmail.com, or join my facebook event {HERE} and let me know there.

(What the shirts might look like, only with proper spelling of Sclero!)

I really REALLY appreciate the love and support I've received so far. Special thanks to my mom for helping me organize this, and my aunt who kind of spurred this. Love you all!

3.17.2014

Some Scleroderma Humor

Found {here}.It's totally okay to laugh. I sure did!
© GREG & BRE AULLMAN
Maira Gall